Monday, December 21, 2009

Groundhogs Day


There is something a bit "Groundhog's Dayish" about life right now...my routine consists of pumping, hanging out with Gabe, and making multiple trips per day to the hospital. Each day I wake up and I have the same list of to do's...laundry (looks so manageable when I go to bed at night but getting it done escapes me nearly every day), thank you notes (if you're reading this and have given us a gift...we are so grateful and cannot wait to connect with a card), washing dishes (the only consistently washed item is my breast pump equipment), and going to the grocery store (we've been out of milk for a couple of days but usually remember around 11 pm with no energy to make another outing). I know we will settle in soon but some days (like today) just feel too short and never ending all at the same time.

More Tests
I know I thank this crew often for praying but really we are so thankful for the prayer time that each of you spend making requests on behalf of our daughter. Neriyah has a renal ultrasound (kidneys) tomorrow. Would love for you to pray that all continues to show health in that area. Wednesday she will have a full MRI of her brain. We have known for sometime that the doctors planned to do this before she was discharged but there is something about the reality of this test that as a mommy again brings me to my knees.

Updates on Eating and Temp
For the most part, Neriyah is eating well (this really started the day after we asked for prayer so thank you!). She only gets every other feeding by bottle and the others are gavaged. Some days are good...others are fair. When they are good she finishes her whole feed...but there are definitely those that she tires out on. We know that she will not come home until she consistently nipples all of her feedings so this is still one of our greatest requests.

We have been amazed by the change in her temperature...she is now consistently holding at the right temp! (another prayer answered within a day).

Now that Neriyah is in an open crib we are able to dress her in real clothes...they look incredibly small before we put them on...but sure enough they are still too big! The picture posted is in her first preemie outfit.

We will keep you posted on the results of the tests from this week. Grateful as always for your continued prayers.


Love,


The Kings

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